Tag Archives: Early Alzheimer’s lethargy

IN EARLY ALZHEIMER’S AVOIDING ONLY GOES SO FAR

This stage of living with Ralph’s Early Alzheimer’s has become something of a blur. There is so much sameness; so much less, well less drama. 

Ralph is calm and comfortable. And I’m used to, even sanguine doing everything practical that needs doing—appointments, bills, cleaning, cooking, planning. Basically thinking for two—and even used to the conversations we have over and over. We don’t analyze or discuss the situation any more the way we used to when he was first diagnosed. We avoid confronting the facts I suppose.

I make sure he has his coffee and pills in the morning and that he showers and changes his clothes (every other day at least). I check in on him randomly through the day to make sure he has eaten lunch, that the dogs have been let out and brought in before they bark, that he has books to read, that his two beers appear from their secret hiding place when he asks, that he accomplishes small chores like taking out the garbage and picking up dog poop in the yard when asked. He likes the sense of accomplishment; I no longer ask/expect more. He still takes an occasional walk with me if prodded. We always have dinner together, always with a radio on to hide our lack of conversation. 

And sometimes we listen to a music program (sometimes the same show repeated on different nights, but Ralph doesn’t notice). These are our most engaged, lively times, but Ralph seldom listens to a whole show before wandering back to the comfort of reading in bed.

So our life repeats itself day after day. Boring but Easy. Asking little and not really paying more attention than absolutely necessary, I go through the routine of our days without the anxiety that used to roll over me daily.

But last night I had to notice.

First Ralph surprised me by asking about our upcoming trip back to the farm to get his tools. Now the tools, or the fact that the farm’s current owner threw them out with all the other junk in the storage shed so they are gone for good, are a topic of frequent conversation. But last night Ralph wasn’t asking about the tools; he was talking about a trip he believed was planned, was sure I’d told him we were going very soon for a visit

He accepted my response, that no trip was planned and that in fact no trips were planned because of Covid. But I could tell he was confused in a different way than usual. He had not forgotten something, or even misremembered.  He had created an idea out of the blue. I was thrown off kilter but let it go. 

A few hours later I came into the bedroom a little before nine. Ralph and the dogs were tucked. By rote I checked that the door from the bedroom to the back patio was locked. It wasn’t. 

Which was strange because Ralph is an obsessive stickler for doors being locked. Now that we live in a city, locking all the doors has become one of Ralph’s repetitive behaviors, like rubbing his hands, and drinking his beers. 

“Ralph, you didn’t lock the door?” I said in casual surprise but without concern. I always check the doors myself anyway, a bit of a stickler myself these days. 

“I thought I did,” he said, and then added. “You better check them every night. I can’t  trust myself to remember.”

Avoiding only goes so far. Those five words broke my heart. 

Physical Illness in Memoryland Part 2 Or How Sick Is Ralph Anyway?

dog with tea.jpg

 

I’ve lost track how many days have passed since I had to stop writing a post because Ralph was heading off in his truck. I didn’t catch him but he was back in fifteen minutes. He had headed to his office for a pack of cigarettes. He smoked one, had a beer and went back to bed.

He  followed the same routine for the next six days: in bed most of the day until shortly before supper. Each afternoon he smoked one cigarette and has one beer and then ate a hearty meal before a second cigarette and back to bed. During the day I brought him turkey soup, glasses of water, cups of tea, and cold medicine. He coughed occasionally but not that much. He blew his nose when I reminded him it might be a good idea. When I asked him if he felt better or if the cold seemed to be going away, he considered before answering yes, he did feel better. But every day when I suggested it might be nice to take a hot shower or sit up a bit he said, “In a bit. I’m resting now.”

On Friday, concerned that maybe I was missing something, I called his doctor to see if he should start an antibiotic since his smoking might make him more vulnerable. I was told that his symptoms as I described them didn’t warrant antibiotics. Yesterday was rainy so I didn’t even suggest getting out of bed, hoping a little extra babying would get him over the hump.

And sure enough he slept through the night without a cough or sniffle (irksome since I’m still coughing myself awake). This morning I told him I was meeting a friend for a quick breakfast and running a couple of errands I put off yesterday.

“Are you sure you’re up to it?”

“Up to what? I’m just having breakfast and going to the drugstore and ATM.”

“I thought you were sick.”

“No, you’re the one who has been sick with a cold this week.”

“Oh right, I forgot.”

“So you’re getting over your cold.”

“Yea, I think I am.” He nodded. “I feel better.”

When I got home two hours later, he was still in bed. I suggested a shower. He thought about it.

“In a bit. I’m resting now.”

After he ate lunch, I again suggested he take a shower. “It’s a sunny, warm day and a little fresh air wouldn’t hurt,” I cajoled.

“In a bit. I’m resting now.”

The thing is. I don’t think he’s down to the last remnants of his cold. I also think that the drastic cut in his intake of nicotine, caffeine and beer is affecting his energy level; he’s probably in a kind of withdrawal, which is obviously a good thing in that maybe he won’t go back to as many cigarettes or beers a day, but meanwhile my instinct tells me that if we’re not careful this total non-activity could become the newest normal.

But what if I am misreading the situation. What if I am being cold and heartless. Fortunately he’s got an Emory appointment which means 1., he has to get out of bed and 2., I’ll find out if I’m wrong and he’s actually sick.

Still, this is another glimpse of the future when determining what Ralph’s capability—how hard to push him and when to let him be—will be increasingly difficult.