Tag Archives: Alzheimer’s life list

(losing) Memory and (losing interest in) Food

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My lunch today: a salted dark chocolate covered caramel. And it was just as delicious as it sounds. I am telling you this dirty secret (not that I eat that unhealthily every day, but the caramels were on sale at the store and called my name; plus it was my birthday) because I may not be the best judge of anyone else’s eating habits given that food looms so large in my life. I love taste and texture, salt and fat and sugar and acid. I eat for comfort and I eat for joy. I am as much gourmand as gourmet (and not a little obsessive about dieting as well). My favorite movie may be La Grande Bouffe, about a group of men who eat themselves to death. It’s one of Ralph’s favorites too.

In fact, I would say eating, along with arguing over politics, has been the activity we have most enjoyed sharing as a couple.

When we first met, Ralph was not terribly into food. He liked breakfast, mainly because it was cheap and fast. But he quickly converted. I was a restaurant reviewer for a while, and he loved going with me to restaurants. He loved the ambience of a fine dining establishment and of a funky, edgy dives. He loved experimenting with new flavors and spices. He also loved my cooking. And occasionally he loved to cook—there was a period when he got into soup making and took over making dinner for months on end.

I still love eating.

Ralph not so much.

We all know that in the late stages of Alzheimer’s, eating becomes difficult and eventually impossible. I dread that time and Ralph, thankfully, is nowhere near that incapacity. But day-by-day his eating routine has been evolving that mirror larger changes in Ralph.

He still claims to love my cooking. No matter what I put in front of him at the dinner table, he tells me it is delicious. Even sad leftovers mixed with canned soup. And he always eats his dinner. But he’s never what I’d call hungry. He never asks for a dollop more than what I put on his plate. He certainly never asks for seconds the way he used to every night. He always has a nuttybuddy ice-cream cone for dessert. Even if we have company and I’ve prepared a special dessert, he prefers his nuttybuddy.

This has been our dinner routine for a while. He also has cereal every morning for breakfast and a sandwich for lunch with a glass of milk. He has lost some weight over the last year or so because he doesn’t eat snacks anymore (unlike his spouse who may have put on the same number of pounds he’s lost), but if anything he looks fit and healthy.

The thing is I went away for one of my babysitting stints last week. Before I left I cooked chili and stew and bought a roast chicken. I divided meals into nightly portions I labeled. I filled out his life list in detail, telling which foods for which nights. He looked it over and we were all set.

Our friend R. came to stay with Ralph for the first few days I was gone. Then for the rest of the time I was away, I had arranged for another friend to “drop by” daily. One day she made him banana bread. The next she used up all the salad greens and pears etc. he wasn’t eating and made him a big salad. Every night when I asked him if he’d had dinner, he said yes he had eaten or he was about to look on the list and eat as instructed.

Nevertheless, when I got home all the chili and most of the stew I’d left was still there. So were the banana bread and the salad. And half the roast chicken. And some spaghetti R. had evidently cooked.

Ralph had found it easier to have a peanut butter sandwich for his supper than microwave a bowl or plate from the fridge.

This is not a big deal in the scheme of things. He remains healthy. He did eat. He can make a sandwich and he did heat and eat at least one bowl of stew. And I froze the leftovers to use another day. From now on, if I am gone I will be even more explicit on the life list and will verbally walk him through heating up his dinner every night.

But I feel sad. Ralph’s disinterest seems to be spreading slowly over our lives. I realize I can’t leave him as easily as I have in the past.  That he needs to be watched over, not because he can’t function but because he’s just not that interested.

 

Alzheimer’s By Phone and Life List

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Me: Hey, just checking in

Ralph: Hey, how is everyone.

Me: Fine. We’re all fine. R is working. J is away, remember. That’s why I’m here.

Ralph: Oh that’s right. I forgot.

Me: So what are you doing?

Ralph: Not much

Me: Did you take your pills?

Ralph: Yep I checked them off the life list. Today is Thursday right.

Me: It’s Friday.

Ralph: Oh Right. Well I’ll take them right now.

Pause while he goes to pillbox.

Ralph: I took them and checked them off.

Me: Great. Did you eat dinner (or lunch or breakfast)?

Ralph: Yep

Me: What did you eat.

Ralph: Whatever was on my Life List. How is everyone?

Me: Fine. BabyRalph is asleep

Ralph: How old is BabyRalph now?

Me: One. Remember we came to the birthday last week.

Ralph: Right, right. I forgot. How is everyone?

 

This is more or less the conversation I have three times a day when I am away from home and I have been away a lot lately, on the road between Ralph and BabyRalph, mixing up husband and grandbaby care. I also have a me-time weekend with college friends and a two-day family reunion coming up in the next six weeks. So that’s a lot of travelling and a lot of leaving Ralph at home.

 

I have mixed feelings of course. Travelling to be a NanaNanny is tiring but wonderful. At the reunion I get to take my son as my plus one since Ralph doesn’t travel. My friends and I have already planned every minute of our us-time weekend with restaurants and shopping and even some culture thrown in. l want to go on these trips and I feel guilty about going—but mostly guilty for not feeling more guilty.

 

Because the truth is that Ralph seems to thrive when I’m gone. He loves what he calls his Life List of activities and events to check off once accomplished. He takes his pills, he eats his meals that I have left, he sees the people who’ve arranged to visit. And he can see he has done so. The Life List works much better when I am not home. Ralph loves to check off his accomplishments. He has a sense of being in control of his life. But when I’m home that same checking off has the oppressive and demeaning effect of too much overseeing. He prefers the more passive activity of glancing twenty times a day at the calendar when I am home.

 

Of course, when I say thriving, “seems” is the operative word. Because when I’m gone, my impression of Ralph is based on phone calls. In the numerous phone calls each day he “seems” really pretty happy. And pretty cognitively together. He makes funny jokes and is more engaged in conversation than he ever is when we are sitting in the same room. If I ask a question he has a ready answer. He asks me questions about what I am doing that he never asks when we are together. We actually have fun, especially when I put him on speakerphone with BabyRalph (no face time with Ralph’s flip phone) and he can hear baby babbling and I explain what BabyRalph is doing. He is engaged.

 

Or maybe I am kidding myself to feel better about travelling. After all, I know that when he talks to other people, they find him equally engaging although as soon as he hangs up, he has no memory of what they talked about or often even than they talked. Yet, in the moment he seems engaged. Or maybe he is engaged.

 

In any case, I do know Ralph doesn’t mind getting to sit on the porch with the dogs listening to the news and smoking—or sitting with them in the car as he’s been doing during cold weather—without my nagging him to come inside. I suspect he prefers the simple premade dinners to my salad and chicken dinners and that he sneaks in extra nutty buddies for dessert.

 

And when I get home tomorrow he’ll say he’s glad to have me back before returning to his nap or the porch as if I’d never been away.