Tag Archives: Alzheimer’s joy

MUSIC AND MEMORY LOSS (AND STRENGTHENING?)

I have finally found an organized activity for Ralph that he not only will attend but actually seems to enjoy. The Ochsner brain clinic has started a research project on the value of music therapy for Alzheimer’s patients, and when a spot was offered, I jumped on it. 

Before our first session, Ralph was clearly nervous and bit leary, as he is of anything medical. I kept assuring him he would not be having cognitive tests or any shots, and he seemed to believe me, but he was more doubtful when I said he would have fun. I wasn’t sure myself.

It was awkward at first. We met Meredith in a typical, very small medical examination room that did not seem conducive to a creative musical experience. Meredith was young and blond, non-descript behind her mask, as we were. We made the usual small talk, and as usual, Ralph kept turning to me to answer questions for him while I sat slightly apart trying to keep quiet and make him answer for himself. Almost grudgingly he told Meredith he played guitar a little and that he was partial to Bob Dylan. I might have (definitely) interjected there, saying he’d played seriously as a kid and had interviewed major country and folk musicians as a journalist in his youth. She nodded mildly and I thought to myself She’s too young and tentative for this to work.

Then she pulled out her guitar and began to sing. CRAZY, the Patsy Cline classic written by Willie Nelson. It may seem an odd choice, given Meredith was singing to a man with what is labeled dementia, but who cares. It turned out that even masked Meredith, who got a degree at NYU, can really belt out a song. And how crazy was it, in a good way, when Ralph almost immediately began to sing along unprompted. He knew almost all the words. At the end she clapped. And so did he. 

She asked if he’d like to play her guitar. Hesitantly he started Blowing in the Wind, then gathered some steam and it was her turn to sing along. She pulled out more songs. She played the guitar but gave him drums to improvise with. They sang and sang. Of course he didn’t remember all the words, but who would. Meredith was genuinely enjoying Ralph. When she introduced some rhythm and memory exercises, I held my breath waiting for him to resist, but he went along like a trouper. And coincidently days later I heard a science report the the research shows statistical evidence that playing music helps cognitive function, particularly for those with Mild Cognitive Impairment or in the early stages of Alzheimer’s. Ralph’s diagnosis has held in early Alzheimer’s so he is the perfect candidate for this “therapy.”

At Meredith’s request, Ralph now takes his guitar him. As I push him to get ready each Friday morning,  I do have to remind him how much he enjoys the sessions and he looks at me grumbling I do? But once he’s there, he’s fine. Usually now I sit in the waiting room because I think letting him have this magical hour alone is probably better, but I did sit in again the other week just for fun because listening to the two of them harmonizing with the voices and instruments as Meredith guides him along is  like a mini concert.

Still, as lovely as this new experience has been, it is also bittersweet. Rick’s relationship to music has changed. Only 19 months ago when Ralph and his oldest son pulled out their guitars at Christmas, Ralph could play one song after another as if one song reminded him of another, some well known, some obscure. It was as if his cognitive impairment dropped away.  That is not exactly the case now. When I ask him to play at home, joking–Serenade me while I cook–he usually says he’s too tired. And if I push and he gets out the guitar, he clings to Blowing in the Wind. It is the one song he’s comfortable with now. Without Meredith sitting beside him, he struggles to find the chords and words. Meredith is giving him a playbook and I hope that will help because at the moment he doesn’t seem willing to try other songs on his own. The diminishment is almost more apparent. 

Almost, but Ralph’s joy each Friday hasn’t. 

Which raises a reality I think about a lot—that Ralph with his cognitive impairment seems happier than he ever was without it, and than I am living with him a lot of the time.

A Birthday Gift to REMEMBER

 

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We had a small dinner party for Ralph’s birthday last week. His favorite roast chicken and the above birthday cake, which made him laugh. As long as his sense of humor holds I figure we are doing ok.

As we stood around waiting for the chicken to come out of the over (a slight mechanical failure in pushing buttons having caused the cooking time to stretch longer than expected),  conversation turned mildly political. No one was disagreeing but people were analyzing causes and results.

Ralph suddenly became very heated, in a way he never gets these days, and accused a friend of talking down to him. Shortly afterwards he headed out to the porch, to smoke I assumed. A few minutes later he was back, relaxed and charming.

The same friend who’d just upset Ralph began discussing how his poor hearing has created problems for him when he has conversations. I could see Ralph was listening carefully and that the two men were bonding in a new way. Without any overt statement they were acknowledging and empathizing.

I was so enjoying this pleasant moment after the earlier upset that I almost didn’t bother to check my phone when it beeped that I had a tex. I’m glad I did.

The text was from my son

“Don’t tell him I told you but dad just told me he couldn’t keep up with ur convo and felt like he was ‘slipping’. Maybe make sure he’s being included. I think he stepped away from table to call me or something.”

“I told him ‘who cares’ just do your own thing blah blah.”

I texted back about the little almost argument and how much better Ralph seemed.

Oh good. I mean honestly was really weird cause he sounded really really down when he called. And then I kinda said that he like did sound a lot better, like a switch flipped. Was actually eager to get off phone and get back.”

I texted back that I found it “interesting” that Ralph trusted our son enough to call him under these circumstances. They have never had an easygoing relationship. Not understanding and even a little intimidated by his bookishness, Ralph recognizes he was too hard on our son as a kid and now is almost shy around him.

“Yeah, I was surprised, it was sweet.

The rest of the evening was a rousing success, Ralph more involved and emotionally present than he’s been for some time, and more openly affectionate with our friends than I have ever seen him.

But for me, the moment of pure between father and son (and mother and son) is the birthday gift that keeps on giving.

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P.S. Speaking of gifts, after one more crisis concerning a flat tire, the tractor finally seems to be working!